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HSE Agrees to Fund Friedreich's Ataxia Drug in Ireland
The Health Service Executive (HSE) in Ireland has agreed to fund a drug for patients suffering from Friedreich's ataxia. This decision is expected to provide clarity and access to treatment for those affected by the rare genetic disorder.
25 Aug, 06:30 — 25 Aug, 11:06
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Moderate (37/100)3 sources25/33
Spectrum spread— 2/5 buckets covered8/33
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Geographic diversity— 1 region4/34
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irish-timesHigh6d ago
HSE agrees to fund drug for patients with Friedreich’s ataxia
Omaveloxolone, branded as Skyclarys, has been approved in US and Europe for treatment of disease
By Shauna Bowers
Read full article →irish-independent7d ago
HSE senior management team to make final decision on Friedrich Ataxia drug funding
People suffering from rare disease ‘beg’ for life-changing medicine
By Cate McCurry
Read full article →the-journal6d ago
Tánaiste hopes today's HSE decision on Friedreich's ataxia drug gives patients 'clarity'
The issue has become a political one in recent weeks, with opposition politicians calling for the HSE to approve the funding of the drug.
Read full article →Coverage Timeline
First report: irish-independent · 25 Aug, 06:30|Full coverage: 3 · 5h|Window: 5h
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