Friedreich’s Ataxia Patients Plead for HSE Drug Funding

Patients suffering from Friedreich’s Ataxia are urging the HSE to fund a potentially life-changing treatment that costs €288,000 per patient annually, which the HSE has resisted funding.

20 Aug, 16:39 — 20 Aug, 16:39

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the-journal11d ago

'I don't want my parents to bury another child': Friedreich’s Ataxia patients 'beg' HSE for drug

The HSE was against funding the potentially life-changing treatment, which costs €288,000 per patient per year.

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Friedreich’s Ataxia Patients Plead for HSE Drug Funding

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'I don't want my parents to bury another child': Friedreich’s Ataxia patients 'beg' HSE for drug

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